Monday, July 22, 2013

Fragile X Awareness Day

Today is the day. This is our second National Fragile X Awareness Day. Saturday our group, Fragile X Families of the Appalachians, hosted the Fragile X Festival 2013 in honor of today! We had a great turn out!

Every day I can see improvements in Dalton. Sometimes it is a very small thing but it's something! Looking back a year ago I can see a huge difference. He is able to answer most questions in an appropriate way and he is talking 5x what he was. We don't always know what he is talking about but he is trying. He is sometimes talking in complete sentences as well.

We are still fundraising for our service dog but we are about halfway there! yay** We are now selling t-shirts. To get one you can go to or There are 2 different shirts to choose from. We have to sell at least 30 of a t-shirt before they will ship any of them. They will run until August 1st.

We have moved this week to a new place and we are trying to get settled in. We have stairs like 3 flights of them and we were worried to death about the kids falling down them. However, I was the first to fall because I simply wasn't paying attention. So much for worrying about the kids...


Proverbs 24:16 NKJV--For a righteous man may fall seven times And rise again,
But the wicked shall fall by calamity.

Tuesday, July 2, 2013

Plans disrupted....

Charlie and I work very hard to have "a plan" for this or that. We have spent hours, even days sometimes debating about this or that. And yesterday was one of those days where the God said "You had a plan? Well, I'm changing it."

I feel like I spend at least half of my days planning how things will go, or where we are going to go, when the bills will be paid, or what's for dinner. However, my plans normally get disrupted. If not by God then most definitely by the kids. Example, Dalton-thinking"Mom wants me to look remotely clean because I have Speech and OT and must go out in public. How can I NOT do this? There's a purple sharpie!!!" Me talking to him-"Dalton was it really necessary to draw lines & circles ALL OVER your arms, legs, and stomach with the sharpie! }f you could just keep it on your legs and stomach next time so it can be covered, I would appreciate it."

It's Fragile X Awareness month and July 22nd is National Fragile S Awareness Day. July 20th will be our run/walk in honor of this day and we are super excited about it!!! I hope everyone will help us raise awareness this month!


Personal insight-I don't know if you know this, I'm sure most of you do, but God waits on no man and when he says something will happen this way or that, it will regardless of our opinions.