Thursday, June 20, 2013

It all comes back at once....

We had to cancel the event on June 29th for Dalton's dog due to lack of availability and schedule conflicts. We do intend to try again but just aren't able to do it on this day.

For the most part we have settled into a routine and have accepted what Dalton's diagnosis means for our family and for him. But I have days were the feelings that I felt the day we found out come back at me in a rush. Most of the time it is set in motion by me seeing someone Dalton's age accomplish something I always thought he would do or that I think he would like to do. Sometimes they are set on by the frustration caused by dealing with silly doctors.

I'm not sorry for what he is or for what our life is. God gave us an amazing gift in Dalton that we couldn't have even begin to imagine.

I try to limit my pity party to 5 minutes maximum before I put my big girl panties on and continue about my day. I say pity party because Dalton doesn't care what anyone else is doing and he doesn't know any different than how he has always been. He will pat me on my head and say "Me okay, me fine." --He calls me (mommy) Me.

He always has a smile to offer to cheer me up and make my day bright again.

Now who could be even slightly unhappy after seeing that smile!!

In honor of National Fragile X Awareness Day our LINKS group will be hosting a Fragile X Festival July 20th in Bristol, VA! We are super excited about spreading awareness to our area!

X

James 1:12 NKJV

Blessed is the man who endures temptation; for when he has been approved, he will receive the crown of life which the Lord has promised to those who love Him.