The hardest part about all of this--Is the unknown. It's what has driven us to find answers for Dalton's issues and now even with an answer it's what plagues me everyday. What will he be like in 5 years, 5 weeks, or even 5 minutes some days.
I think as humans the not knowing is the scariest thing for us. Well for me anyway. Because the unknown isn't something I can't control or even guess at. Sure there is a certain amount of uncertainty in everyone's life. But there is also a "normal course" that most people's life will follow. So, to know that the "normal course" won't be an option is earth shattering. Because even if the course just slightly changes to the right or left or if it completely diverts to a different direction. You just don't have any idea of what is going to happen.
Of course regardless of whether I know the answer or not God knows it. That is what I have taken comfort in. God knows the plans he has made for me, Dalton, and the rest of my family.
We have made it through our first week of working each morning and sitting down for at least 15 minutes each day. He even sat a little longer for me today. :) Another small victory for us.
So, my husband ask me where I came up with "X Marks the Spot" as the name for my blog. I thought well maybe no one else gets it either. Since he was diagnosed with Fragile "X" and in the games/movies "X" marks the spot for a treasure. I thought it was truly fitting because Dalton is one of our little treasures.
The LORD is my light and my salvation; Whom shall I fear? The LORD is the strength of my life; Of whom shall I be afraid? Psalm 27:1