Music To My Ears....

It's been a long time since I got to write on her. We have been super busy planning fundraising for the service dog for Dalton and planning fundraisers for the Fragile X Families of the Appalachians LINKS group.

And in the middle of all the planning madness, Dalton has done exceedingly well at school and with talking more. We are working on the clarity of what he does say. I had an IEP meeting with next year's teacher last week. He will be in Kindergarten! Blows my mind how time is going by so fast! I just hope he does as well next year as he has done this year.

BUT I have even bigger news :) About a month ago, I received my first "I Love You" from Dalton. He was about to get in trouble, so he grabbed my face planted a kiss on me and said I Love you. Apparently he knew there was no way he would be in trouble after that. It was the sweetest words I have ever heard.

He amazes me every day with what he has accomplished,  his imagination, and how much he has matured in a short time. Don't get me wrong we have our days and still have many struggles BUT we are moving forward all the time and to me that's a success by any measurement system!

I have to keep reminding myself that the timeline that I have in my head or heart may not always be Dalton's timeline or God's.

1 Corinthians 2:9 NKJV0

 But as it is written: “Eye has not seen, nor ear heard, Nor have entered into the heart of man. The things which God has prepared for those who love Him.”

Genetics

When you have a “genetic difference” it gives a whole new meaning to the saying “bad genes.” Sometimes that phrase even stings a little after you actually find out you have what some would consider “bad genes.” Since we have received our diagnosis I have come in contact with families that embrace their “genes” and with families that deny them. Regardless of which side of the fence they choose to be on, it doesn’t change the genes that they have.

 

Our heritage and genes are what they are. In the end they can’t be changed, hidden, or denied. Most of the time you have no idea of the “differences” you have in your genes or chromosomes until something happens and there are reasons to question it.

I have a broken X and my husband has a difference on his 5^th chromosome. The difference between the two is that my broken X finally decided to show up. Charlie inherited his difference from someone just like I inherited my broken X from someone.

I love the statement “It can’t be me, I don’t have any symptoms!” Well, I didn’t either! I never have trouble making friends, being in social situations, and was generally a straight A student. Refusing to be tested so that “you” don’t have to “admit” that it could have come from you doesn’t change whether it did or not. It just means that you don’t know for sure!

Regardless of how we feel, whether it be guilty, sad, or torn. Why as parents, if we know it is a possibility, would we not be tested to see if we are carriers of something that could affect our children? Our opinions don’t change what is.

2 Corinthians 1:7 NKJV And our hope for you is steadfast, because we know that as you are partakers of the sufferings, so also you will partake of the consolation.

X