Tuesday, July 22, 2014

Fragile X Awareness Day 2014

July 22nd is National Fragile X Awareness Day! I love this day because my Facebook explodes with facts about Fragile X and pictures of people across the Nation wearing green or a Fragile X shirt/hat to spread awareness and support. I hope that all of my family and friends join us in spreading that awareness.

This day to me is about spreading awareness so that our children can be accepted for who they are. Their quirks, flaws, flapping, squealing, hyperactive, repetitive, beautiful, loving, kind selves. Each day we have struggles and each day we have new accomplishments!

Fragile X has changed our lives in very big ways. It has definitely taken us down roads we never imagined. We have meet wonderful new friends and families all over the US because of Fragile X. We have been supported and reached out to from our hometowns, families, and friends in ways we could never have imagined.

Here is some of my family wearing their green and Fragile X shirts today:








Help spread awareness with us today! Don't forget to tag me in your picture so I can see them!!

X

Psalm 139:14 "... I am fearfully and wonderfully made: marvellous are thy works...

Mom's Life --- I wanted to add this today because at almost the end of the song they sum up motherhood in 7 words. And it is a beautiful depiction of what life is really like most of the time :) Enjoy!

Thursday, June 5, 2014

Lessons in thankfulness....

Wow! The past 4 weeks we have traveled to somewhere out of state for at least 2 days every week!!! I have been exhausted.

This week Dalton and I went down to Vanderbilt to have his soft palate checked out. They said that everything is okay structure wise but it just isn't strong enough to make the correct sounds all the time. But that will just be something we have to work on. We were just happy that NO SURGERY is required for that. That was our main concern.

The day before we went for his appointment, we went to Dollywood. I debated on whether or not we were going to take Arizona with us on the trip because we weren't coming back home after Dollywood. We stayed with a friend in the Knoxville area. I didn't know what we would do with her while we were in Dollywood but I really wanted her to go to Vanderbilt with us. So, I decided to take her, well more like I felt like I "really" needed to for some reason. She got to stay in Doggywood while Dalton and I played (it was only for like 3 hours).

*I have to put a quick side note here so you can get the full picture* Arizona is trained to be in the "heel" position on my left side so when she is tethered to Dalton he walks on her left side. Therefore as we were leaving the building he was closest to the road. Even though he is connected to Arizona he still holds my hand for some reason. I guess it's just what he is used to (I'm not complaining just stating facts).

While we were in the office Dalton had gotten some stickers for being cooperative and had put them on a piece of paper to make a "picture." We were walking back to the parking garage and a big gust of wind comes and takes the picture out of his hand and into the road (which was crazy busy with traffic). Well before I even knew what had happened I felt the leash tighten and tug and look back to see Dalton bolting for his picture. Luckily the strap that connects Dalton and Arizona isn't long enough that he even got off the sidewalk.

But in that moment, I thought if she hadn't been there who knows what would've happened. I like to think that I could have grabbed him in enough time that he couldn't have gotten in the road but there's no way to know that for sure. After I had the two of them back in the van I stopped for a moment to thank God again for all the people that made it possible for us to get Arizona and for 4 Paws giving her the training that she has to help me keep my baby safe.

Sometimes 2 hands just aren't enough. Again I want to say a huge "THANK YOU" to all those who helped make Arizona a reality for us. You all have no idea how much it means to our family!!!

X

Psalm 107:1 NKJV --- Oh, give thanks to the Lord, for He is good!
For His mercy endures forever.